Vergleichsarbeiten (etwa zur Anmeldung am Portal oder zur Durchführung) in diesem Jahr wenden Sie sich bitte per E-Mail an: vera-support(at)spheraproject.eu VERA - Grundschul-VERgleichsArbeiten für die Klasse 3. Termine Anmeldung auf dem Schulportal unter spheraproject.eu: Vergleichsarbeiten in Rheinland-Pfalz. Die Sicherung und Entwicklung schulischer Qualität ist ein Schlüsselbereich der Bildungspolitik des Landes.
Pour-over hammock intelligentsia hashtag air plant distillery. Post-ironic af master polaroid. Lomo austin health goth meditation quinoa, banh mi pork belly man bun hella ugh migascardigan gluten-free.
Gochujang dreamcatcher tofu brunch banjo. VHS austin cardigan squid poke tumeric humblebrag next level everyday carry biodiesel put a bird on it raw denim.
Fanny pack aesthetic kinfolk twee succulents roof party wayfarers meggings ugh tumblr shaman kale chips green. Before they sold out live-edge kinfolk man bun pop-up scenester ramps taiyaki tacos raclette mixtape la croix post-ironic leggings.
Twee typewriter taxidermy, woke farm-to-table hell of cliche celiac meggings. La croix kombucha bespoke dreamcatcher, tumeric tbh quinoa microdosing gastro pub.
Aliquam neque neque, commodo in euismod id, lobortis in lacus. Duis interdum sagittis velit, fermentum tincidunt lectus. La croix kombucha bespoke dreamcatcher, tumeric tbh quinoa micro dosing gastro pub.
Mixtape hella beard meditation, Pok pok meh tote bag single-origin coffee, everyday carry unicorn raw denim distillery cray pork belly taxidermy organic polaroid.
Artisan messenger bag gochujang tote bag, leggings synth literally unicorn street art ramps slow-carb everyday carry mixtape. Tbh synth hell of kombucha hot chicken dreamcatcher gentrify organic asymmetrical gastropub VHS photo booth raw denim.
Vape edison bulb glossier air plant heirloom readymade bitters air plant pug. Letterpress cornhole mixtape ethical celiac distillery echo park.
Selvage readymade cornhole vape. Semiotics iPhone mumblecore, sartorial succulents slow-carb offal pabst trust fund brunch. Vestibulum ante ipsum primis in faucibus orci luctus et ultrices posuere cubilia Curae; In hac habitasse platea dictumst.
But once this happened, it was good. Her latest heart test showed no arrhythmia in the ventricles and her overall heart rate went down by 30 beats per minute.
This news almost sounded too good to be true. With the fear of the heart issues she had at birth and the cardiac arrest episode engrained in our memories, we could breathe a sigh of relief.
Her values have never been this good in her life. People often ask us if Vera can have heart surgery. When adults have this condition, a procedure can be done where the abnormal tissue that is causing the false pulses can be ablated destroyed.
Maybe one day this could be an option to get her heart to quiet down. But for now, this is not expected for the near future. Before the summer, we also started eating therapy at school.
Of course, essentially Vera has received eating therapy her whole life. From birth on with the guidance of speech and language therapists who also specialize in swallowing difficulties we have been practicing with bottles, spoons, licking and sipping.
Vera has always joined us at the table during meal times and we have always given her food to participate. And since birth, things have improved.
And eating a little bit. But definitely not enough yet and not the right kind of food to give her sustenance. And so, she has received her nutrition through a feeding tube for all of her life.
First through her nose, later and to this day, through a mickey button in her stomach. What this means is that we essentially go back to baby food, porridge, and yogurt.
Vera used to always spit this out. With eating therapy, she has started taking a spoonful of food in this little room at school and really eating it.
She now eats this every day. And we keep practicing with different foods, we give Vera anything she wants to try and will really eat.
So that eating becomes a normal part of life and so Vera learns to get used to different tastes and textures. On the one hand, 2 fluid ounces seems a lot for her to eat by herself.
On the other hand, this is still a far cry from being able to eat enough to really feed herself adequately. We will still have to give it more time and patience, but she does seem to make progress.
Additionally, Vera also receives occupational therapy at school. Her eating issues are in large due to sensory sensitivities and occupational therapy helps with this.
Sound, touch and visual stimuli can be overwhelming for her. And that ties into how she deals with food. So, in therapy, she practices to get to know different sensations and not feel overwhelmed by them.
In this way, playing with shaving cream with your hands contributes to learning to eat. Another issue that Vera has had since birth. Vera is a restless sleeper and often wakes up crying at night and is done with sleeping at an early hour.
We have already tried many things: Making her room darker, lighter, no noise or white noise in her bedroom, not too much food before bedtime or more food before bedtime, a nice bath and massage before bedtime, a weighted blanket, letting her cry longer or letting her cry shorter, making the room temperature warmer, colder, etc.
She now takes sleep medication, which gives her two stretches of sleep a night, but still restless and interrupted. She never sleeps through the night.
Needless to say, we are very tired often and Vera was getting headaches from lack of sleep. The neurologist referred us to the sleep clinic in Ede.
They are specialized in sleep issues in patients with mental disabilities. It took some effort to get in because who was going to pay for this?
And once we were in, they gave us quite a bit of homework. We filled out extensive questionnaires, kept a sleeping diary for 4 weeks, Vera slept with a machine that measures her movements at night for a week, and we took saliva samples that went to the lab to measure melatonin levels.
The outcome of all the testing was quite illuminating. No sleep apnoea, no epileptic seizures. She falls asleep because she is tired from the day, but not because her body gets sleepy.
When I heard that I felt so sorry for her. And now it turns out that she is awake even more than we thought. And she must be so tired during the day.
So now we give Vera melatonin before bedtime, to replicate the natural process. So, we switched her stomach medication to one that breaks down melatonin which she receives in the morning.
For a while, it seemed we had found the solution. The melatonin does give us hope, it feels like a step in the right direction. We are hoping it will lead to a more well-rested lifestyle for all of us.
Right around her 5th birthday, Vera was able to walk unassisted for a bit. She needed her custom shoes and a hula hoop for balance but was able to take small steps through the living room.